Hello X,
As you know, in 2013, God blessed us with our first angel Mia Bella. 2 years later, God blessed us with another angel, Amberly Angelina, who was born with PKU, an inherited rare disease where her body cannot break down an amino acid found in a protein called phenylalanine. Without treatment, phenylalanine builds up in the blood and causes irreversible brain damage and many other behavioral and central nervous system problems. Currently, there is NO CURE for PKU, and while there are two new treatments that exist today, Amberly Angelina is not able to take them currently. She depends on the unimaginably restrictive low-protein diet as treatment, and we are not satisfied with that. Our ultimate goal is a cure for Amberly Angelina, and we wanted you to be one of the first to know that Saulo and I have agreed to be part of the effort to reach one!
Saulo and I are honored to be Co-Chairing the November 11, 2023, Lifting the Limits for PKU gala in Houston alongside PKU parents Jessica & Gabe Denham and genetic counselors Kate Mowrey and Megan Morand Richardson. The gala is an opportunity to raise awareness and much-needed funds for more effective treatments and a cure for our children. My ask of you and X (spouse) is for you to join us as a member of the Gala Host Committee. The host committee is an integral part of the success of our event and enables us to reach more people outside of our small PKU community to increase awareness and financial support. The expectations for a host committee member are to attend the gala, bring a table or two friends to the gala, and to collaborate with the National PKU Alliance and our gala committee to obtain auction items and sponsorships. We will meet as a group on a regular basis and welcome any and all input. This memorable night will take place on Saturday, November 11, 2023. The NPKUA team is currently working on getting proposals from tasteful hotels with ballrooms in Houston. We will let you know the selected location soon.
Your support and participation on the committee would be greatly appreciated, and it would be an honor to have you and X as part of our team. Please let me know your thoughts and any other questions that you may have. We will have a kick-off meeting with the entire host committee once we hear back from you.
As you know, it takes a village and a community to enable change and to make a difference. History shows us that parents and families affected by rare disease get the job done. This is a one-time-only fundraising gala in Houston. Please join us on this journey to make Houston history for PKU.
Thank you,
Saulo and Andrea Gayosso-De La Torre
Amberly and Mia’s blessed parents
As you know, in 2013, God blessed us with our first angel Mia Bella. 2 years later, God blessed us with another angel, Amberly Angelina, who was born with PKU, an inherited rare disease where her body cannot break down an amino acid found in a protein called phenylalanine. Without treatment, phenylalanine builds up in the blood and causes irreversible brain damage and many other behavioral and central nervous system problems. Currently, there is NO CURE for PKU, and while there are two new treatments that exist today, Amberly Angelina is not able to take them currently. She depends on the unimaginably restrictive low-protein diet as treatment, and we are not satisfied with that. Our ultimate goal is a cure for Amberly Angelina, and we wanted you to be one of the first to know that Saulo and I have agreed to be part of the effort to reach one!
Saulo and I are honored to be Co-Chairing the November 11, 2023, Lifting the Limits for PKU gala in Houston alongside PKU parents Jessica & Gabe Denham and genetic counselors Kate Mowrey and Megan Morand Richardson. The gala is an opportunity to raise awareness and much-needed funds for more effective treatments and a cure for our children. My ask of you and X (spouse) is for you to join us as a member of the Gala Host Committee. The host committee is an integral part of the success of our event and enables us to reach more people outside of our small PKU community to increase awareness and financial support. The expectations for a host committee member are to attend the gala, bring a table or two friends to the gala, and to collaborate with the National PKU Alliance and our gala committee to obtain auction items and sponsorships. We will meet as a group on a regular basis and welcome any and all input. This memorable night will take place on Saturday, November 11, 2023. The NPKUA team is currently working on getting proposals from tasteful hotels with ballrooms in Houston. We will let you know the selected location soon.
Your support and participation on the committee would be greatly appreciated, and it would be an honor to have you and X as part of our team. Please let me know your thoughts and any other questions that you may have. We will have a kick-off meeting with the entire host committee once we hear back from you.
As you know, it takes a village and a community to enable change and to make a difference. History shows us that parents and families affected by rare disease get the job done. This is a one-time-only fundraising gala in Houston. Please join us on this journey to make Houston history for PKU.
Thank you,
Saulo and Andrea Gayosso-De La Torre
Amberly and Mia’s blessed parents