MISSION TRIPS TO ECUADOR
Each year we have our annual mission trip to Ecuador. Ecuador added the PKU test to the newborn screening just 5 years ago. There are less than 40 patients diagnosed with PKU. The PKU formula is not available for immediate distribution to the patients and some do not have formula for several months. Today the blood test to manage PKU is only available to the patients one a year and at best twice a year. There are needs everywhere in the world but with your help we can save one brain at a time. Donate TODAY!
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HOW IT ALL STARTED
I was born and raised in Ecuador. Every year we go visit my family back in Ecuador. This year was different and special because we made it intentional to share about Amberly's PKU in Ecuador which lead to an amazing blessing.
We discovered that there was currently no treatment in Ecuador for PKU and the PKU heel test was recently implemented in all the hospitals. We met several families who were struggling with the PKU diagnosis. We decided to turn our trip from a vacation to an advocacy meeting. We started by reaching out to the government and requesting meetings to allow us to bring formula and low protein food for PKU patients. We obtained a donation from the company Vitaflo in the UK, who was so amazing to donate us 1,000 cans for our patients. Unfortunately this formula never made it out of customs.
In 2020 we were allowed to share with medical students and doctors about the treatment and monitoring of PKU in the USA. We also met amazing families who came to our cooking event to learn new low protein recipes that will allow for the entire family to share the meals that looked and taste the same. We are working with universities in Ecuador to be able to start a treatment plan for our patients to monitor their levels.
We need you to impact so many lives to allow patients to live an outstanding life!
We discovered that there was currently no treatment in Ecuador for PKU and the PKU heel test was recently implemented in all the hospitals. We met several families who were struggling with the PKU diagnosis. We decided to turn our trip from a vacation to an advocacy meeting. We started by reaching out to the government and requesting meetings to allow us to bring formula and low protein food for PKU patients. We obtained a donation from the company Vitaflo in the UK, who was so amazing to donate us 1,000 cans for our patients. Unfortunately this formula never made it out of customs.
In 2020 we were allowed to share with medical students and doctors about the treatment and monitoring of PKU in the USA. We also met amazing families who came to our cooking event to learn new low protein recipes that will allow for the entire family to share the meals that looked and taste the same. We are working with universities in Ecuador to be able to start a treatment plan for our patients to monitor their levels.
We need you to impact so many lives to allow patients to live an outstanding life!
ABOUT ANDREA
Andrea is a mother who discovered she was a carrier of a rare gene, PKU. God allowed Andrea to meet her husband Saulo who was also born with a rare PKU gene. Together they had 2 amazing daughters, Mia and Amberly. Mia may or may not have the rare PKU gene but Amberly was diagnosed with PKU at 7 days old. Their family has devoted their lives to raise awareness of PKU and help those who are giving up on PKU. Everyone deserves to live a perfect life no matter what the diagnosis is.
God tells us in
Psalms 139:14:
“I will praise You because I have been fearfully and wonderfully made”.
God tells us in
Psalms 139:14:
“I will praise You because I have been fearfully and wonderfully made”.
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